Developmental Delays and Special Needs
Arc of New Jersey is a human rights advocacy organization actively committed to full community participation and inclusion across the lifespan for all individuals with intellectual and related developmental disabilities. The Arc of New Jersey is an affiliated chapter of The Arc of the United States, and community-based services are available statewide through a strong network of local county chapters. For The Arc of New Jersey, call 732-246-2525. For the Arc of Morris County, call 973-326-9750.
Asperger Syndrome Information and Support
Autism Insurance Law
Autism New Jersey/COSAC 1-800-4-AUTISM
Parent group in NJ for Autism, Asperger's Syndrome, and PDD.
Autism Services Group 1-855-3-Autism
This group manages the process for connecting autistic children and their families with ABA providers. They are not part of a health insurance company, but will help families work through their health insurance benefits to receive ABA therapies for their children.
Autism Speaks: Tool Kits
Community Support (include schools, support groups)
Local and national links for parent support groups and legislative news. The publication list has a number of helpful brochures. Family Education Network
has everything you need to know about sending your child to school. The Individuals with Disability in Education Act (IDEA)
addresses your child's rights in school. PACER Parent Advocacy Coalition for Educational Rights
will fill in where the previous two sites may have left off.
EARLY INTERVENTION in New Jersey
For any child between birth and 3 years of age with developmental delays and disabilities. Regionalized point of entry #1-888-653-4463. You do not need a referral or insurance to get information or to get a free (state-run program) evaluation.
The Child Health Insurance Program (CHIP)
is a partnership between state and federal goverments to provide health insurance for children from working families with incomes too high too qualify for Medicaid but to low to afford private coverage. Managed Care Links
This site provides links to health care information from state agencies, Medicaid agencies, technology sites, publications, managed care plans and consumer information. Health Hippo
provides hundreds of links to policy and regulatory information related to health care. Center for Medicare & Medicaid Services (CMS)
is the federal agency which manages Medicare, Medicaid and Child Health Insurance programs. Click on the information clearinghouse section for a list of HCFA publications. Social Security Administration
online answers a lot of questions about benefits, who qualifies for benefits as well as local offices. Department Of Regulatory Agencies
- Contact your state department for any additional information. For example Colorado offers the following: www.dora.state.co.us
, a great online brochure "What Happens When Your Health Insurance Says No". Family Voices Publication List
"Managed Care for Children with SHCN" is a wonderful brochure explaining managed care as well as what kind of questions to ask about your insurance coverage.
Medical Information from Caring for Children with Special Health Care Needs
is one of the best organized sites with information on education about your child's chronic condition. Rare Genetic Diseases in Children A
well organized site with links on financial, educational, and medical resources for children with genetic disease. RxList is an online pharmacy database. The Waisman Center
is dedicated to the advancement of knowledge about human development, developmental disabilities, and neurodegenerative diseases: http://www.waisman.wisc.edu
Resources for Parents, Siblings, and Patients
Bandaids and Blackboards
patients and siblings tell their stories about living with a chronic illness. Sibling Support Network
is a site for the brothers and sisters to check out.
Sound Advice on Autism
A World-Renowned Expert answers frequently asked questions about autism. On this excellent website from the American Academy of Pediatrics (AAP), you can either listen to the answers or read the transcript to the questions you select. If you are curious about autism, are new to an autism diagnosis within your family, or you simply want to hear from an expert in the field, please visit this site!!!
Special Child Health Services Case Management Unit
County by County Contact List
Statewide Parent Advocacy Network (SPAN)
1-800-654-SPAN or (973) 642-8100 Information about NJ Education Laws given by parents of children with special needs. All Special Child Health Service offices have a local SPAN worker. In Morristown, call Awilda Belardo 973-971-6632.
Tracking bracelets from Project Life Saver
Project Life Saver is an organization that provides tracking bracelets monitored through local sheriff departments for children/adults with disabilities. National resource number i 757-546-5502 or 1-877-580-5433. Morris County is 973-285-1579.
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